I’M IN REMISSION 🙌🏻💃🏼🎉.
After nearly 6 years of being poorly, endless hospital trips, tests, operations, bloods and being told ‘this is my life’ we found out a year ago that it was Lyme disease causing my illness and I started receiving private treatment back in November thanks to many of your kind donations. I am so happy that I can tell you all I am in remission. I still have a long way to go getting my body back to functioning properly without meds / walking aids but now we know that I am 100% heading in the right direction and so close to getting my life back 🤞🏻 I’m so happy no words can explain, thank you everyone for your support and donations. Things are finally looking up ☺️❤️
0 Comments
Hi Everyone, Here is the latest on my Lyme journey. If you have any questions please feel free to contact me. T xx Hey everyone, Here is the latest on my lyme journey. If you would like to get in contact with me or donate please follow the links bellow. T xx Hi Everyone, Here is the vlog for the end of my third round of antibiotic treatment. Sorry that I have not done many updates during this round however, as my health declined I then got behind on uni work so had some catching up to do and not enough time to video and edit updates. If you have any questions, would like to talk to me or would like to donate please follow the links below. T xx Hi everyone, Sorry about the length of this vlog I just wanted to show you how I have been recently. As I have not been well enough to do individual updates I have combined them together. *WARNING SCENES OF SEIZURES* Please remember that this treatment has been tailored to me so please do not copy my protocol if you would like information contact me and I can hopefully point you in the right direction T xx Hi everyone, I have now finished my second round of antibiotic treatment. I feel like I am finally starting to make progress! I still have a very very long way to go and it is only a small improvement but to me it is huge and I am so happy to finally be heading in the right direction. Thank you so much for all of your kind donations that have allowed me to get so far into my treatment, however, funds are starting to run low if you would like to donate to help me be able to continue with this amazing treatment please click on the donate link below! Thank you, T xx Unfortunately I am still battling the flu and as a consequence of coughing 24/7 have lost my voice so cannot record a new vlog to explain what is happening over the images etc... So here is the summary before you view bits I recorded previously. I am now able to get my drip administered at home which is AMAZING as it saves the agony and upheaval of traveling 6 hours up and back to London each week. On Christmas eve morning I had been very ill, had a seizure and planned on spending my day in bed resting for Christmas, however my lovely family offered to go to the beach which I cannot resist as it is my favourite place to be, and I really wanted to try out my new wheels that meant I could get ONTO the beach instead of sitting in the car park on a bench, these wheels were amazing and once we got over the soft sand it was smooth and comfortable which is huge for me as every tiny bump generally puts me in agony, So I would like to say thank you to St Austell Brewery for funding the 'off road' wheel set that now means I can get to the beach and on walks with the ones I love. Christmas day.... I took a load of pictures when I had some energy in the morning (as you will see) however in reality I spent so long resting prior to this day and then after the roast I had a seizure and missed out on games and dessert and spent the whole day in agony. Although I put make up on and made an effort to hide my illness and pain the reality is that christmas day was hard, I love christmas and spending time with my family, and they are all so understanding when I do become more ill but although I have all that support I still wish to be 'normal' whatever that is... Im not convinced that anyone is 'normal' but when us chronic illness warriors use the term 'normal' we mean not be in pain, not worry about can I walk/sit/stand, have a seizure, get to a quiet place if i can't stand noise or sound and just all of the little things that 'normal' healthy people don't even have to think about. And today... I am still fighting off the flu, I have been even more ill than usual (I wasn't sure how possible it was to feel worse than when on the antibiotics) but it is very possible, the flu is horrendous. I have spent days in bed not being able to move or sit up, disorientated, feeling sick, coughing, muscle spasms and the list goes on and on, on top of my lyme flu really is awful and I would hate for anyone to ever feel this ill. I cannot start my next round of treatment until I am over the flu but the protocol is all in place and ready to go as soon as my body complies. I am currently on different antibiotics but for my cough. Hopefully I will be recovering from this awful flu very soon and onto my next round of treatment, PLEASE keep donating and sharing my story I desperately need YOUR help. Feel free to contact me if you have any questions or would like to help me in any way. T xxx Hi everyone, I am currently on my fourth week of treatment now. I forgot to mention in the vlog that I am now receiving the immune system boost drip at home, although it is still costing it saves traveling and the agony that traveling puts me in as well as the added traveling costs. The £2350 that we have spent in the last 3 weeks is on medicine and appointments alone, not including travel costs. If you can relate to putting on a brave face at events like birthdays or in daily life and people don't understand when you really are struggling more than usual then try and talk to them, I know it sounds simple to someone who isn't suffering from an illness however the reason we put on 'a brave face' is because we don't want you to know the extent to the pain we are in as if you knew how bad it was you would also feel bad and we don't want that, we don't want people to 'feel bad for you' we just need support and I am so so so thankful that I have an amazing support network around me, but it has taken me a long time (and I still don't sometimes) to admit when I am struggling to much to leave the house or even my bed as I didn't want people to miss out because I was stopping them due to my pain but for us lymies and chronic illness sufferers we have to accept our illness and NEVER give up on that faith WE WILL GET BETTER, just accept that help your loved ones are offering in the mean time and don't shut them out, be honest, if you need to talk, talk, rant, shout, cry and laugh, you will get there. If you have any questions or would like to speak then please do contact me, from one lymie/spoonie/chronic warrior to another I'm here xx Hi everyone, This was my second trip to London for treatment. When starting antibiotics it is common to have a herx reaction which I am currently suffering from. I hope that this explanation helps to understand what this reaction is and why I will unfortunately get worse before I get better. If you have any questions or would like to have a chat with me please do get in contact with me xx |