Hi Everyone, I started my treatment on Thursday and it was so refreshing to meet people who understand lyme and believe that lyme exists and are also willing to treat people and help. All of the info is available in the video and if you have any questions please do contact me I will be updating more regularly as my treatment continues so please subscribe below, and follow me on social media all links are available in my contact section xx Enter your email address to subscribe and be notified of vlog updates straight to your inbox!
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Hi everyone, Sorry it has been a while since I have done an update however I have been really ill and lots of things have been going on. Here is the latest on my lyme journey, we are super exited to be one step closer to getting better by going to London for antibiotics, unfortunately it is private so is still going to cost ALOT of money, we need to do some serious fundraising quickly so if you have any ideas please do let me know and share my story with anyone you know! If you have any questions please do contact me xx Hi everyone A lot has been going on in the last few weeks so I have not really had the energy or concentration for blog updates. Since my last video I had to stop the biofilm herbs as I was really ill, also due to my immune system not functioning very well I got tonsillitis and then a cold, I got put onto antibiotics for my tonsils but that had no effect so five weeks on I am still trying to fight it off, which in itself is proof of how lyme really can suppress the immune system. My seizures have started getting bad again, as you may have seen in the last video they are getting more violent and needing to be stopped again, unfortunately I have had 2/3 like this that have gone on for up to 3 hours. The seizure in the video below lasted just under three hours and had to be stopped by taking diazepam, I was conscious throughout which is a horrible sensation when your body is shaking uncontrollably, you can feel the immense pain of every muscle in your body spasming and every nerve firing pain signals whilst hearing and seeing but not being able to talk or move. I am still having seizures on a pretty much daily basis which last for about 30 minutes on average, and then takes about an hour to be able to move and talk. Hopefully we will find a treatment to stop these and I can go back to to living a normal life. The fundraiser that a local young boy called Kieron done was amazing he managed to raise over £600 to go towards my treatment! Although he suffers from lyme himself he battled through and done it, raising an amazing amount of money! Him and his mum are such a lovely family and it is lovely to see that although we have this horrible illness there is a sense of community and we all look out for and help each other. I am really looking forward to the conference in two weeks time if you haven't booked then make sure you do it will be nice to meet some fellow lymies and or anyone interested in getting a better understanding of lyme.
If you have any questions please don't hesatate to contact me x Lyme disease conference Hi everyone, As you know I have been receiving herbal treatment for my lyme disease from a lady called Dame Commander Annette Montague-Thomas. So far she has made a significant improvement to my Lyme and overall health. Annette has taken a huge interest in Lyme disease and has committed a lot of time into researching and trying to help. Annette has experience with controversial illnesses as she treats HIV/AIDS, and has a clinic in Africa where she treats severely ill people with herbal medicine and after many years of battling to help these people get better she is now acknowledged as a very reputable person. Annette is offering people with Lyme free consultation time with only having to pay for your medicines. She is a very genuine kind person and is committed to making a difference. Therefore, Annette has created a Lyme conference, where illnesses will be taken into consideration, it will be wheelchair accessible with breaks throughout the day, as she understands that pain, brain fog and many more of the Lyme symptoms make it hard to concentrate for long periods of time. Dr Armin Schwarzbach MD PhD the leading world expert on Lyme Disease will also be speaking at the conference and offering discounted blood testing of ELISPOT+ AND CD57. If you would be interested in booking then please view the attachment below.
If you have any questions or would like to know more about my treatment and / or illness please contact me x
Fundraising event
Tuff Enuff is an obstacle course endurance race and will be taking place on;
September 23rd 2017 Treverven Farm St Byryan Penzance Cornwall TR196DL Kieran is registered for the Junior 7.5km (wave 2 starting at 2.20pm. Spectators can watch for free, parking is £2 per vehicle, there are also trade stands as well as refreshments being sold, bouncy castle, bar and other activities. If you wold be interested in donating towards Kieran's fundraising please donate through my fundraising page and say that it is for the Tuff Enuff challenge. For people that know Kieran he will also be collecting money himself. I would really appreciate any donation no matter how small and so would Kieran! Week 23 herbal treatment*WARNING* The video below shows footage of a violent seizure. This seizure alternated between these three stages for hours. Hi everyone
I have been on the biofilm herbal meds for a few weeks now. The symptoms of herxing did not seem to be reducing so I had to stop the medicine for 48hours and then start back again on a much lower dosage. Unfortunately after a week of being on the lower dose I went into a massive seizure like how they where at first, I have still been having 1/2 seizures a day however, we don't know what made this seizure quite so violent or long. It was the first violent seizure that I have experienced whilst conscious, this was a horrible sensation as I could feel my body violently shaking and feel the pain as it was getting worse, I couldn't move or talk, but I could hear, see and move my eyes and then after a while mumble small words that my mum, dad and boyfriend had to guess what I was saying. The seizure went on for hours and eventually I managed to take a diazepam and it knocked me out once the seizure finally slowed to small tremors. Usually when I have a violent seizure I am unconscious so I don't feel it as much when it is happening I just feel completely beat up after, but this time I had the after sensation as well as the excruciating pain during. I am continuing to do my physio at home after bath and my strengh is getting better by the day. I do still think that I am heading in the right direction, but chronic lyme takes time and I am prepared for that. If you have any questions or would like to know more about my treatment and / or illness please contact me x Week 20 Herbal treatmentHi Everyone,
I am now on week 20 of my herbal treatment. This week I started a new herbal medication which we are hopeful will break down the biofilm, if it does do this it will be a massive breakthrough for the treatment of Lyme disease! As expected with this comes a lot of herxing so my pain has been heightened and I have been quite unwell but I know that it will pass. My fundraiser at the weekend done amazing and we raised £4,000 to go towards my treatment. Retallack resort and spa done such a great job of setting everything up and the whole day ran smoothly, with races, BBQ, live band, wake show and raffle. So I would like to say a massive Thank You to them! If you have any questions or would like to know more about my treatment and / or illness please contact me x Bath pain rehabilitation
Collapsing and silent seizuresHi everyone,
This is another type of seizure that I have, unfortunately this seems to be happening a lot at the moment and this is not the first time that someone has had to break into the bathroom to get me. I was washing my hands and then blacked out, when mum got in the tap was still running and I was having a silent seizure like this, the seizure went on for about 45 mins, and then my boyfriend and dad has to get me into my room as I could not move and was in a lot of pain. I will keep you updated with more vlogs as my treatment goes on. If you have any questions or would like to know more about my treatment and / or illness please contact me x Herbal treatment - Week 12Hi everyone,
I am now on week 12 of my herbal treatment, I have a new herbal medication that we have called Kill Lyme as it should hopefully kill off any lyme bacteria in my body. I have also been going into hospital once a week to have iAluRil installed into my bladder, this is natural and helps to rebuild the damage that lyme had caused to my bladder which is what made me feel like I had a constant urine infection and a high blood count in my urine when it was dip tested. I will keep you updated with more vlogs as my treatment goes on. If you have any questions or would like to know more about my treatment and / or illness please contact me x |